This section provides helpful resources for North Carolinians with intellectual and/or developmental disabilities (I/DD). The links are listed by different topics that have been covered in our HEAR. SHARE. ACT Lunch & Learn webinar series.
- Health Equality, Health Equity & Health Barriers: An easy read information sheet written by Florida Health.
- Advancing Health Equity for People with Intellectual and Developmental Disabilities: An article published by Health Affairs.
- Health equity: Meaning, promotion, and training: An article from Medical News Today.
- The Native American Disability Law Center: A private nonprofit organization that advocates for the legal rights of Native Americans with disabilities.
Legal Rights (ADA, Olmstead decision, deinstitutionalization)
- A Quick History of Disability Rights (GT Independence)
- American with Disabilities Act (U.S. Department of Labor)
- Community Engagement and Training (DHHS)
- History from Institutionalization to Independent Living: Move to Include (PBS)
- NC Olmstead (NCDHHS)
- ‘Nothing About Us Without Us’: 16 Moments in the Fight for Disability Rights (New York Times)
- Olmstead: What is North Carolina’s Olmstead Plan? (NCDHHS)
- Samantha R. Litigation: Historic ruling affecting thousands of people with I/DD in NC.
- What Is Deinstitutionalization? (Open Society Foundations)
- Your Rights Under the Americans with Disabilities Act (Office of Civil Rights)
Medicaid & Waivers
- The Arc of North Carolina on Medicaid Transformation
- NC Department of Health & Human Services Innovations Waiver
- NC Department of Health & Human Services 1915 (b)(3) to 1915(i) Transition
- How to apply for Innovations Waiver or check your Registry of Unmet Needs (RUN) waitlist status:
- Sign Up: If you or a family member have an I/DD, contact your Local Management Entity-Manage Care Organization (LME-MCO) and request the NC Innovations Waiver. If you are found to be eligible, you will be put on the RUN (Registry of Unmet Needs or waitlist). Ask about the availability of alternative services while you wait.
- Use the interactive map or list to find your LME-MCO organization by clicking on the LME-MCO Directory.
- Sign Up: If you or a family member have a diagnosed or undiagnosed I/DD and you do not have Medicaid for income or disability, contact Medicaid to make an application.
- NC Medicaid Ombudsman
Policy and Legislation
- I/DD Legislative Priorities for North Carolina Organizations: Many organizations in NC decide to focus on advocating by educating and informing on issues. This is a list of those organizations and the resources they offer.
- Frequently Used Acronyms: Individuals and their family members hear and read many acronyms that are used by professionals in the disability community. This resource lists all the commonly used acronyms and what they mean.
- How to find and contact your legislator to tell your story: Put your address into this form and it will provide you with the email and telephone numbers of the General Assembly legislators (House and Senate) who represent the county where you live.
- Boone Resource Guide: List of organizations and agencies that serve people with I/DD and their families in Boone and surrounding areas.
- Greenville Resource Guide: List of organizations and agencies that serve people with I/DD and their families in Boone and surrounding areas.