This section provides helpful resources for North Carolinians with intellectual and/or developmental disabilities (I/DD). The links are listed by different topics that have been covered in our HEAR. SHARE. ACT Lunch & Learn webinar series.
Topics:
- Community Inclusion
- Health Disparities
- Legal Rights
- Policy and Legislation
- School-age Services and Transition to Adulthood
- Voting
- Waivers and Waitlists
- Helpful Guides & Organzations
Community Inclusion
- Social Inclusion of Children with Intellectual Disabilities in a Recreational Setting
- Care Tips for Children with Developmental Disabilities (includes information about person-centered approach)
Health Disparities
- Health Equality, Health Equity & Health Barriers: An easy read information sheet written by Florida Health.
- Advancing Health Equity for People with Intellectual and Developmental Disabilities: An article published by Health Affairs.
- Health equity: Meaning, promotion, and training: An article from Medical News Today.
- The Native American Disability Law Center: A private nonprofit organization that advocates for the legal rights of Native Americans with disabilities.
Legal Rights
- A Quick History of Disability Rights (GT Independence)
- American with Disabilities Act (U.S. Department of Labor)
- Community Engagement and Training (DHHS)
- History from Institutionalization to Independent Living: Move to Include (PBS)
- NC Olmstead (NCDHHS)
- ‘Nothing About Us Without Us’: 16 Moments in the Fight for Disability Rights (New York Times)
- Olmstead: What is North Carolina’s Olmstead Plan? (NCDHHS)
- Samantha R. Litigation: Historic ruling affecting thousands of people with I/DD in NC.
- What Is Deinstitutionalization? (Open Society Foundations)
School-age Services and Transition to Adulthood
- Charting a Course for the Future – A Transition Toolkit
- Early School Transitions and the Social Behavior of Children with Disabilities: Selected Findings from the Pre-Elementary Education Longitudinal Study
- Intervention Central
- NCDHHS Division of Child Development and Early Education – Special Needs Criteria
- North Carolina Department of Public Instruction – Exceptional Children – Resources
- Services for Children with Disabilities
- Special Education Services for Preschoolers with Disabilities
- Transition Plans for Students with Disabilities
- Transition Throughout the Lifespan
- Work Together NC: Information to help plan, prepare and find services for those transitioning to adult-based services and supports.
Voting
- North Carolina State Board of Elections
- Voting: How to Register to Vote (Disability Rights NC)
- Voting: Assistance for Voters with Disabilities (Disability Rights NC)
Waivers and Waitlists
- Innovations Waitlist Dashboard
- NC Department of Health & Human Services Innovations Waiver
- NC Department of Health & Human Services 1915 (b)(3) to 1915(i) Transition
- How to apply for Innovations Waiver or check your Registry of Unmet Needs (RUN) waitlist status:
- Sign Up: If you or a family member have an I/DD, contact your Local Management Entity-Manage Care Organization (LME-MCO) and request the NC Innovations Waiver. If you are found to be eligible, you will be put on the RUN (Registry of Unmet Needs or waitlist). Ask about the availability of alternative services while you wait.
- Use the interactive map or list to find your LME-MCO organization by clicking on the LME-MCO Directory.
- Sign Up: If you or a family member have a diagnosed or undiagnosed I/DD and you do not have Medicaid for income or disability, contact Medicaid to make an application.
- NC Medicaid Ombudsman
- The Arc of North Carolina on Medicaid Transformation
Helpful Guides and Organizations
- Hear.Share.Act Boone Resource Guide 2022: List of organizations and agencies that serve people with I/DD and their families in Boone and surrounding areas.
- Frequently Used Acronyms: Individuals and their family members hear and read many acronyms that are used by professionals in the disability community. This resource lists all the commonly used acronyms and what they mean.
- Hear.Share.Act Greenville Resource Guide 2022: List of organizations and agencies that serve people with I/DD and their families in Greenville and surrounding areas.
- How to find and contact your legislator to tell your story: Put your address into this form and it will provide you with the email and telephone numbers of the General Assembly legislators (House and Senate) who represent the county where you live.
- North Carolina Council on Developmental Disabilities
- Work Together NC’s Service Library: Find a variety of services available for specific needs. Services for each county are organized into regions based on Local Management Entities (LME) and Managed Care Organizations (MCOs) by NCDHHS.